so, i didn’t quite finish off mitochondrial disease awareness week with a bang, but – i gotta tell you – making myself so aware of this disease is kind of a downer. the loads of information i sifted through to put on my blog just sank my heart down to the depths of the seas. and i needed a few good friends to pull me out – which they did and are still doing (austin, tx girls’ day out here i come!!). so, here i am in my trademark belated fasion to finish out our week of awareness.
i’d like to share with you a few blogs of kids with mitochondrial disease. precious, beautiful children with amazing families. some of these kids are already at home in heaven while the their families struggle to recover pieces of their broken hearts and some of the kids are still fighting to make the most of this life. i hope you have a moment to read through them and find out how mitochondrial disease affects so many kids in so many different ways.
i know it can be a little hard to read through these blogs (including mine), but please take a moment to just make yourself aware of mitochondrial disease and how it can affect children and why we desperately need a cure and then shut your computer down and go squeeze every moment of joy out of life!!
thank you all for the many ways you supported us this past week. and for spreading the word to your friends and family about mitochondrial disease. i love you each.